Participation Only

Dementia Data Extract

Purpose and outline

This data extract is designed to collect detailed information from GP practices on the patients who are, or may be, at risk of dementia. It will also collect data about patients diagnosed as living with dementia and the care they receive, and information about patients with dementia who are prescribed anti-psychotic drugs.

A practice will make an opportunistic offer of assessment for dementia to ‘at-risk’ registered patients, where the practitioner considers it clinically appropriate to make such an offer. Where an offer of assessment has been agreed by a patient, the practice will provide the assessment. An opportunistic offer is an offer made during a routine consultation with a patient identified as ‘at risk’, and where there’s clinical evidence to support the offer. When deciding to offer an assessment, practitioners are expected to use their clinical judgement and take into account any concerns raised by the patient or their carer.

Evidence suggests that dementia diagnosis rates in BAME groups and seldom heard communities are particularly poor; therefore the challenge recognises the importance of improving the diagnosis of dementia for such individuals. This provides the justification for adding ethnicity counts to this data collection, as the number of patients with a dementia diagnosis in their clinical record, broken down by ethnicity, is not currently collected.

Anti-psychotic medication is sometimes used to control behavioural problems in patients with dementia. This practice can be very damaging to those patients and is discouraged. This collection will allow monitoring of the level of this prescribing with the intention that there will be a sustained decrease over time.

This service is on CQRS to record a GPs agreement for data extracts to take place only. No data from this service will be recorded in CQRS and there is no payment attached to this service.

How this service is commissioned and provided

Dementia assessment is now a core contract requirement to be offered when the attending GP believes it’s clinically appropriate. It was identified as part of the 2016-17 General Medical Services (GMS) contract agreement with the General Practitioners Committee (GPC) that NHS England will continue to collect dementia activity data, in order to inform future decision making linked to dementia care.

For more information, please read the Data Provision Notice.

There is no service specification as this is now a core contract requirement.

NHS Employers have published technical requirements for this service .

Information about this service

Quality service start date: 01 October 2021

Quality service end date: 30 September 2021

Payment period: N/A

Collection frequency: Monthly

Manual or automatic entry: Automatic

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning: No

System type: GPES service (Core contract)

MI counts/clinical codes

Commissioners and practice should refer to our supporting business rules for information on management information counts and clinical codes.

GP2DRS (Diabetic Eye Screening Programme)

Screening is the process of identifying people who appear healthy, but who may be at increased risk of a disease or condition. It’s different to diagnosis and there will always be some false positive and false negative results.

Purpose and outline

Evidence shows that early identification and treatment of diabetic eye disease could reduce sight loss. The main treatment for diabetic retinopathy is laser surgery.

The eligible population for diabetic eye screening are people with type 1 and type 2 diabetes aged 12 or over. Those already under the care of an ophthalmology specialist for the condition are not invited for screening. The programme offers pregnant women with type 1 or type 2 diabetes additional tests because of the risk of developing retinopathy.

For full details about this service, visit the government website.

Read the GP2DRS Data Provision Notice

How this service is commissioned and provided

This service is commissioned by Public Health England.

Information about this service

Quality service start date: Please contact your RLO

Quality service end date: Please contact your RLO

Payment period: No payment

Collection frequency: Monthly

Manual or automatic entry: Automatic

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning: No

Service type: Non quality service for direct patient care.

Payment count/clinical codes

No payment attached.

Further information

Diabetic Retinopathy Eye Screening – GP2DRS: GDPR information . Why and how we process your data in the Diabetic Retinopathy Eye Screening system, and your rights.

General Practice to Diabetic Retinopathy Screening (GP2DRS) Data Provision Notice

The purpose of this data collection is to improve the process for inviting patients to attend an eye screening appointment. This requirement is being implemented by the UK National Screening Committee (UK NSC) on behalf of Public Health England (PHE).

General Practice to Diabetic Retinopathy Screening (GP2DRS) is a system which automates the sharing of patient information between general practices and local diabetic eye screening programmes. This makes the process easier by extracting the information directly from General Practice (GP) systems and removing the need for manual processing.

Read the General Practice to Diabetic Retinopathy Screening (GP2DRS) Data Provision Notice .

Read the appendix one Structured Query Language (SQL) files included in the specification packs for GP2DRS .

Scope of the collection

All general practices in England.

Legal basis for provision of data

Sections 254(1) and (6), and 304(9), (10) and (12) of the Health and Social Care Act 2012.

Collection

This is an established data collection. Data is extracted monthly.

GP Workload Collection

Purpose and outline

The GP Workload Collection will build on the existing Patient Online Management Information (POMI) data collection, which has been in place for a number of years. The existing POMI data collection is facilitated by the 4 principal general practice system suppliers providing management information (in the form of non-identifiable data) to NHS Digital on a monthly basis.

NHS Digital are expanding the existing POMI data collection to form this GP Workload Collection This will result in NHS Digital collecting an increased amount of data from general practices specifically around appointments. This GP Workload Collection will comprise the collection of the following:

appointments – demographics, status and dates to calculate the TNA (Third Next Available Appointment)

electronic Prescriptions – orders and repeats

functionality of GP systems – access for patients to their medical records and test results

This GP Workload Collection will still be facilitated in the same way as the existing POMI data collection. The four principal general practice system suppliers will provide non-identifiable data to NHS Digital on a monthly basis.

This data collection will enable the NHS to better articulate general practice workload, understand appointment activity and utilisation and demonstrate the use of general practice across the month.

The information will be published via NHS Digital’s website following validation of the data and consultation with the GP professional groups.

How this service is commissioned and provided

This service is commissioned by NHS England.

Access the NHS England Direction

Find out about the Data Provision Notice (DPN).

Information about this service

Quality service start date: 1 April 2021

Quality service end date: 31 March 2022

Payment period: No payment

Collection frequency: Monthly

Manual or automatic entry: Automatic extraction

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning: No

Service type: CQRS participation-only service

Payment count/clinical codes

N/A

Patient Online Management Information (POMI)

Online patient services provided by GP practices including: booking or cancelling appointments, ordering of repeat prescriptions and access to coded information in records.

Patient Online is an NHS England programme designed to support GP Practices to offer and promote online services to patients, including booking and cancelling appointments, ordering of repeat prescriptions and access to coded information in records.

What you can find out

This workbook provides an overview of key Patient Online Management Information (POMI) data from the latest reporting month. There is a national-level summary, a practice-level page, and some more detailed CCG-level data (which provides comparisons to regional and national level values).

What the report can’t tell you

The data relate to online services only; the report cannot tell you how many appointments were booked overall, or the level of appointment availability. The data are collected in an aggregate level from each GP practice, which means individual patients can’t be identified.

Further information

Patient Online Management Information (POMI)

Patient Online is an NHS England programme designed to support GP Practices to offer and promote online services to patients, including access to coded information in records, appointment booking and ordering of repeat prescriptions.

GP Appointments Data Collection in Support of Winter Pressures

This is a weekly, automatic collection of anonymised data from general practice appointment systems. It is used to measure capacity and utilisation in general practice, allowing healthcare managers and commissioners to plan and manage services more effectively.

This collection of anonymised appointment level data is to allow and improve the understanding of capacity and utilisation in General Practice. It will also provide a forward look of appointments scheduled. This will help inform more effective planning and management of capacity. It will also aid the understanding of seasonal pressures at national level to inform the wider strategy on the provision of services across primary and secondary care, and in improving patient access to general practice.

From April 2020 general practice will be required to categorise appointments, using a national standard that support the intention to publish GP activity and waiting times data monthly from 2021, alongside hospital data. Publication of the data will expose variation in access between networks and practice.

The data will be provided by the suppliers of Principal Clinical Systems under the GP Systems of Choice (GPSoC) framework. The data will be extracted from both the GP Clinical Systems Appointment module and the consultation module.

This data collection will enable the NHS to better articulate general practice workload, understand appointment activity and utilisation and demonstrate the use of general practice across the month.

This service is on CQRS to record a GP’s agreement for data extracts to take place only. No data from this service will be recorded in CQRS and there is no payment attached to this service

For more information, please see the Direction and Data Provision Notice.

Enquiries should be sent to: primarycare.domain@nhs.net

Information about this service

Quality service start date: March 2020

Quality service end date: February 2023

Collection frequency: N/A

Manual or automatic entry: N/A

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning: No

Service type: CQRS participation-only service

N/A – there are no payment counts or read codes associated with this appointments collection

Further information

General Practice (GP) appointments data in support of winter pressures: GDPR information

Why and how we process your data within General Practice (GP) appointments data in support of winter pressures, and your rights.

GP appointments data collection in support of winter pressures version 2: categorisation

Learning Disabilities Observatory

Background

The Learning Disabilities Observatory (LDO) is working on the Health and Care Project, which aims to get a more detailed understanding of the health of people with learning disabilities in each part of the country, the care they get and how this compares to the health and care of people who don’t have learning disabilities.

The programme will ask about each local area where the NHS provides care these are known as Clinical Commissioning Groups. It collects information about how many people there are with (and without) learning disabilities in each area.

It will also ask about:

general health measures

regular health checks and immunisations

conditions that are important for people with learning disabilities

health problems important for everyone

how well some key illnesses are being managed.

It will also ask how much difference there is in care for people with learning disabilities and others.

The information will help Clinical Commissioning Groups (CCGSs) and other health and social care planners to make sure they look after people with learning disabilities, along with other people.

How this service is commissioned and provided

This service is commissioned by NHS England.

Read more about the Learning Disabilities Observatory Health and Care Project .

Find out about the Data Provision Notice (DPN).

Information about this service

Quality service start date:

Quality service end date:

Payment period: No payment

Collection frequency:

Manual or automatic entry: Automatic

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning:

Service type: Non quality service.

Business rules

Learn more about the Learning Disabilities Observatory (LDO) 2017-2018 business rules version 1.1

Learn more about the Learning Disabilities Observatory (LDO) 2018 -2019 business rules version 2.2

National Diabetes Audit Programme

The National Diabetes Audit (NDA) Programme was originally developed to help improve services and monitor the impact of the diabetes national service framework (NSF). Since 2011 the child (paediatric) component has been delivered by the Royal College of Paediatric Child Health (RCPCH).

The National Diabetes Audit Core Programme is made up of 4 modules. The:

National Diabetes Core Audit (NDA core)

National Pregnancy in Diabetes Audit (NPID)

National Diabetes Footcare Audit (NDFA)

National Inpatient Diabetes Audit , including National Diabetes In-patient Audit – Harms (NaDIA-Harms).

The NDA programme also runs occasional audits such as:

Structured Education

Transition

Aims and objectives of the NDA

The NDA helps improve the quality of diabetes care by enabling participating NHS services and organisations to:

assess local practice against National Institute for Health and Care Excellence (NICE) guidelines

compare their care and outcomes with similar services and organisations

identify gaps or shortfalls that are priorities for improvement

identify and share best practice

provide comprehensive national pictures of diabetes care and outcomes in England and Wales

Through participation in the audit, local services are able to benchmark their performance, identify where they are performing well, and improve the quality of treatment and care they provide.

A Quality Improvement Toolkit has been developed in collaboration with the Royal College of General Practitioners (RCGP) to help practices use their diabetes data to improve services.

Diabetes UK manages Quality Improvement Collaboratives (QIC) which set local aims to improve diabetes care. Using audit data, specialist services work together with other providers to develop skills, share learning and improve clinical practice.

View our latest publications

The NDA publish data in a variety of formats including national strategic reports, interactive spreadsheets and patient friendly reports.

View the latest publications from the:

National Diabetes Core audit

National Pregnancy in Diabetes Audit

National Diabetes Foot Care Audit

National Inpatient Diabetes Audit

National Diabetes In-patient Audit – Harms

National diabetes data is now available via the Data Access Request Service (DARS). Full details of the process and how to apply are available on the DARS webpages.

Legal basis information

NHS England has instructed NHS Digital to establish and operate a system for the collection and analysis of the NDA. This type of instruction is commonly known as a Direction.

This legal basis for this data collection (Direction under section 254 of the Health and Social Care Act 2012), means that GP practices and specialist services are now legally required to supply the data for their practice or diabetes clinic.

NHS England is only able to give a Direction where it considers the information to be collected or analysed necessary to provide NHS services.

A Direction must specify the information to be collected and include relevant details such as why the information is needed and what analysis is to be carried out. This information is included in the NDA Programme requirement specification and Technical Specification documents.

Collecting patient identifiable data

People with diabetes should receive annual care checks and should achieve a target for their blood glucose, cholesterol and blood pressure values; see the NICE Clinical Guidelines and Quality Standards.

As a result, Core NDA, NPID and NDFA all collect patient identifiable data. This data allows patient records to be linked across the diabetes audit programme and to other health care datasets, such as hospital episode statistics (HES), patient episode database for Wales (PEDW) and Office for National Statistics Mortality dataset.

The NDA does not collect patient names. The patient identifiable data we collect is:

NHS number

date of birth

postcode

Linking to other datasets decreases the burden on services of entering the data. Demographics such as ethnicity, diabetes type and postcode recorded in Core NDA can be used for patients registered in NDFA or NPID so it doesn’t need entering twice. Data linkage allows us to understand the types of complications people with diabetes can experience. These linkages help us to give a better picture of diabetes care whilst managing the burden on services for data collection.

NHS Digital has strict criteria to make sure patient data is kept safe. All data is held securely upon encrypted servers. Access to patient records is restricted to crucial personnel. Once the data is received the datasets are pseudonymised to protect patient identity. This means that:

data items such as date of birth are converted to age, or year of birth

postcodes are converted to lower layer super output areas (LSOA)

Through participation in the audit, local services are able to benchmark their performance, identify where they are performing well, and improve the quality of treatment and care they provide.

A Quality Improvement Toolkit has been developed in collaboration with the Royal College of General Practitioners (RCGP) to help practices use their diabetes data to improve services.

Diabetes UK manages Quality Improvement Collaboratives (QIC) which set local aims to improve diabetes care. Using audit data, specialist services work together with other providers to develop skills, share learning and improve clinical practice.

View our latest publications

The NDA publish data in a variety of formats including national strategic reports, interactive spreadsheets and patient friendly reports.

View the latest publications from the:

NHS numbers are converted to a unique ID for that person

NHS Digital will only share patient identifiable data with another provider if they have a clear and approved legal basis to receive such data. For example, a research project that has Section 251 support, or consent from patients for us to share the data.

Management and governance of the audit

The NDA is commissioned and managed under contract by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England and the Welsh Government. The NDA is delivered by NHS Digital in collaboration with Diabetes UK.

The NDA collection has been assured through the Data Standards Assurance Service (DSAS) process, with the findings presented to the national Data Coordination Board (DCB). The DCB acts with delegated authority from the Digital Delivery Board (DDB) and directly from Secretary of State as the main governance route through which data and standards requirements are agreed.

As part of this assurance the data items, collection process and guidance documentation have been reviewed and an assessed to understand the burden on services. The DCB have fully approved the NDA as a collection, awarding it a certificate of assurance.

The National Clinical Audit Advisory Group (NCAAG) has produce statistical guidance on how potentially outlying performance of healthcare providers can be identified. The Outlier Policy and the National Diabetes Audit Programme page summarises the policy and its impact on the National Diabetes Audit programme.

Contact us

For further information about the audit please email diabetes@nhs.net or call 0300 303 5678. Lines are open Monday to Friday 9am to 5pm. For general enquiries please email enquiries@nhsdigital.nhs.uk.

Resources

Information for Caldicott Guardians of NHS Organisations – National Diabetes Audit. Information necessary to approve the participation of your trust in the National Diabetes Audit (NDA).

Annex A – National Diabetes Audit Programme requirement specification [pdf, size: 846.2 kB]

Annex B – National Diabetes Audit Programme technical specification [xlsx, size: 128.4 kB]

Understanding practice in clinical audit and registries tool: UPCARE-tool [docx, size: 299.4 kB]

National diabetes data is now available via the Data Access Request Service (DARS). Full details of the process and how to apply are available on the DARS webpages.

Further information

NDA reports – Diabetes UK

Find out what reports have been published in the latest audits of diabetes care in England and Wales. Download and read our easy-to-read versions aimed at people with diabetes and the general public.

Diabetes UK

We are Diabetes UK. Our vision is a world where diabetes can do no harm. We’re leading the fight against the UK’s biggest and growing health crisis.

Association of British Clinical Diabetologists

The Association of British Clinical Diabetologists is the national organisation of Consultant Physicians in Britain who specialise in Diabetes Mellitus.

Royal College of Paediatrics and Child Health

We want more healthy children. We make sure that our members get the knowledge and expertise they need, and we involve children, young people and families in all that we do.

How we look after your health and care information

Understanding the information we hold about you, what it’s used for, and your choices.

National Diabetes Audit: GDPR information

Why and how we process your data within National Diabetes Audit systems, and your rights.

NHS Health Checks

Purpose and outline

This information will be extracted in June 2018 using the General Practice Extraction Service run by NHS Digital.

NHS Digital will be using patient records, held securely by NHS Digital, to analyse information about people who have been invited for and attended an NHS Health Check, and the numbers of people who have been invited for but not attended an NHS Health Check since 2009.

PHE will be using information from records for patients aged 40-74 years (the age group that the NHS Health Check is aimed at), and people aged 18-39 years who have been invited for and/or attended an NHS Health Check. This will provide information about cases where people may have been invited and/or attended an NHS Health Check before reaching the eligible age of 40.

How this service is commissioned and provided

This service is commissioned under a Direction by the Secretary of State. For more information, please email nhshealthchecks.mailbox@phe.gov.uk.

Information about this service

Quality service start date: 1 April 2021

Quality service end date: 31 March 2022

Payment period: No payment generated

Collection frequency: Annual

Manual or automatic entry: Automatic

Included in data collection: All system suppliers (TPP, INPS, Microtest and Emis)

Co-commissioning: No

Service type: Non-quality service

Payment count/clinical codes

Commissioners and practice should refer to our supporting business rules for information on management information counts and clinical codes.

Have a question about the GP Collections service?

Please contact enquiries@nhsdigital.nhs.uk

For CQRS technical support, please contact support@cqrs.co.uk or call 0800 440 2777.

Further information

NHS Health Checks business rules

NHS Digital are responsible for producing and maintaining the extraction specification (business rules) for NHS Health Checks.

NHS Health Checks website

We want more healthy children. We make sure that our members get the knowledge and expertise they need, and we involve children, young people and families in all that we do.

NHS Health Check: GDPR

Why and how we process your data in the NHS Health Check system, and your rights.